Sharing My Journey with Spondylolisthesis

Welcome! While I am not a doctor, healthcare provider, nor a specialist of the spine, I am most certainly one very experienced patient! I write about my various chronic health conditions and medical adventures, or rather, my struggles, so that I may share my gained knowledge and personal experiences with all of those whom seek help, support, information, resources, along with facts and opinions, in regard to the spine condition Spondylolisthesis. At the time I was diagnosed, the internet was in its infancy, which made it a challenge to find additional information on the condition, let alone connect with those who had already taken the long journey of which I was just beginning. My hope has been, and continues to be, that through the power of the internet, and sites like Blogspot, that I may be able to reach others facing similar circumstance. By sharing my story, knowledge, research and continual experiences, I hope to offer a little guidance, and bring some comfort and empowerment where I had none. This condition, especially when severe, can certainly turn one's life upside down, and I know first hand that proceeding blindly into such a situation can be very overwhelming, painful and scary. If you have any questions or comments, and would like to contact my directly, please check out my Blogger Profile or email healthandillness@gmail.com. You may also contact me by way of my profile here and/or submit a comment at the end of each post.

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Thursday, March 8, 2012

Resource Links for all things Spondylolisthesis

This document contains resource links for everything involving Spondylolisthesis. 
This document contains a compilation of resource links related to Spondylolisthesis. The main intention of this list is to offer everything from general information, treatments, surgical information, disability-related resources, and everything in-between that relates to Spondylolisthesis. I have begun by creating different "categories" as they come to mind. If you have any additional suggestions, please contact me so that I may add resource links to this list. I hope this selection may be helpful when seeking assistance and treatments for a wide array of matters to do with Spondylolisthesis! I will continue to add resource links as I find them, so please check back in the future if you don't see what you're currently looking for ... Please also feel free to contact me at spondyostories@gmail.com with any questions regarding these and other resources!
*Are you interested in joining the *closed* Spondylolisthesis & Retrolisthesis Support Group on Facebook? Please click on the link and ask to join! My.Spondyo.Group 
GENERAL INFORMATION FOR SPONDYLOLISTHESIS:

Spine Health 

Spine Universe 

Spine Universe (Pertaining to high grade Spondylolisthesis slips)

PubMed Health (U.S. National Library of Medicine - Spondylolisthesis)

OrthoInfo - AAOS (American Academy of Orthopaedic Surgeons - Spondylolisthesis)

SURGICAL TREATMENTS/INTERVENTIONS:

Laser Spine Institute (Endoscopic Spine Surgery for Spondylolisthesis)

The Bonati Spine Institute (Laser Spine Surgery)

North American Spine (Minimally Invasive Spine Care)

Spine Centers of America 

Mayo Clinic (Back Surgery - When it's a Good Idea & Spinal Fusion - Why it's Done)


MASSAGE & ALTERNATIVE TREATMENT RESOURCE LINKS:

Massage Therapist Locator & Referral for the United States (Assists in locating a large number of different kinds of massage therapists/treatments in your given region)

Soma Massage Integration Therapy (Information regarding Soma Massage & Practitioner Locator)

Reiki Energy Work (Definition & General Information about Reiki Energy Work)

Physical Therapy & Occupational Therapy for Spondylolisthesis (Spine Universe)

Chiropractic Care for Spondylolisthesis (Spine Universe)

DISABILITY, INSURANCE, FINANCIAL & MEDICAL-RELATED ASSISTANCE RESOURCES: 

Basic Disability Resources (United States)

Social Security Administration 

Medicare 

Medicaid 

AARP Health (Supplemental Insurance Coverage for Medicare - 50 plus & Disabled)

Getting Approved for Social Security Disability Benefits (Post Brenna wrote about obtaining approval for SSDI - Suggestions, Tips & Info., derived from own SSDI case & speedy approval)

Health Insurance Plans (Locate and Compare Health Insurance Plans Online)

Health Insurance Plans (Locate and Compare Health Insurance Plans Online)
BLOGS & WEBSITES WHICH PROVIDE ADDITIONAL RESOURCES & SUPPORT FOR ALL THINGS RELATED TO CHRONIC HEALTH CONDITIONS:

"The Spoon Theory" document/But You Don't Look Sick (Gives a wonderful sense of what it's like to live with a chronic health condition - A WONDERFUL way to get others in one's life to truly understand what it's like to live with a chronic illness and/or disability! This website, butyoudontlooksick.com, also offers a large array of additional resources.)

Spondylolisthesis Stories (Brenna's website collecting individual's stories regarding Spondylolisthesis)

Spondylolisthesis Grade 5 (Brenna's personal blog about Spondylolisthesis)

Spondylolisthesis Open Forum on Facebook (Brenna's Spondylolisthesis Facebook Page)

Tuesday, January 17, 2012

My New Spondylolisthesis Group on Facebook

For all of those with Spondylolisthesis whom are searching for others with the condition, I recently created an online closed support group for Spondylolisthesis on Facebook! I hope that this new group may be a success and helpful for anyone who deals with Spondylolisthesis! After it's fourth day, I'm already learning new things about the condition myself, and connecting with some really wonderful people. Spondylolisthesis is a condition, that while fairly common, both the general public and the medical community seem to know a limited amount about it. It can be a very isolating, and therefore, a lonely condition because of this fact. I was diagnosed with Spondyo in 1996 at the age of 14, following 4 plus years of increasing pain. At the time of my surgeries I had not met anyone with the condition, and had no one to talk to regarding my experiences, pains, and fears. When I began blogging about this condition and a few other chronic health conditions in 2009, I met those with Spondylolisthesis for the first time, and in many ways, it was a tremendous relief, and frankly, rather exciting. No one should have to deal with this amount of pain and struggle, but some of us do, and therefore, knowing that there are others out there who can truly relate is huge! I hope that if you yourself have this condition (or if a family member does), that you may take the time to join this group and see if it's helpful in regards to your questions, frustrations, and so forth. It is a closed group, and therefore, allows for more privacy, as only those whom are apart of the group can see the posts. I hope this fact offers some level of comfort! I look forward to seeing and hearing from you in this group soon! Blessings, Brenna (Cat)

My.Spondyo.Group

Please feel free to comment ...

About Me

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My interest for all things related to health & illness arises from my own struggles with chronic health conditions. I have found it most therapeutic & empowering to write about my many experiences within this realm. Through education, my own research, and my ongoing personal challenges, I am teaching myself how to become my own best advocate. To learn more about me, please see the page entitled "About Cat" located at the top of the page. If you have any questions or comments, you are welcome to contact me through the "about" section listed above, or email me at healthandillness@gmail.com. Please note that this address is also linked through my profiles. Blessings of health, energy and peace.

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